Living with

I live with hearing loss in my left ear.  We found out when I was 5 that I had over 90% hearing loss. I basically have no hearing in my left ear. I was told when I was younger that I would never make it as a musician.. and yet I stand proudly and grateful that I have music in my life. Never tell me I cannot do anything, because baby - I will and prove to the world I can and will conquer!

Throughout my life I have talked with many people that have hearing loss. I was not sure if there were organizations out there that were working to find a cure for hearing loss as well as promote hearing health, until now. One day I decided to research the internet to find such a group and found Hearing Health Foundation. I was so impressed with their mission statement:  Hearing Health Foundation's mission is to prevent and cure hearing loss through groundbreaking research. I am proud to say that a percentage of "Fire in the Rainstorm's" sales go to Hearing Health Foundation to help with their mission by preventing and curing hearing loss with their fine research!  

I was recently diagnosed in having Spasmodic Dysphonia - which is a vocal disorder. Each day is different from the next.  I really took for granted being able to speak.  Since I was diagnosed with Spasmodic Dysphonia, I've gone through various stages in my psyche.  I was angry at first, then I was extremely depressed, and finally accepted that I yes, I have this.   I am so grateful for the medical technology nowadays so that I can receive treatment.  

Oh? What IS it? From the National Spasmodic Dysphonia Website:  It is a neurological condition that involves "spasms" of the vocal cords causing interruptions in speech and affecting the voice quality. SD can cause the voice to break up or cause a strained or strangled quality.

The bottom line is, I won't allow this to take away my happiness. I deal with it on a daily basis. Is there a cure? No. Is there treatment? Yes!! I receive botox injections into my vocal cords to give me the ability to speak without the spasms. Even though this is annoying, I will stay the course and do my best at what I do, and that is composing, recording music and releasing music. 

 

PEACE IN MUSIC



For more info on Spasmodic Dysphonia - Click here: NSDA - National Spasmodic Dysphonia Association